George's 4th Quiz Night - Nov 2015
for a 4th year running, George's next Quiz night will be on 21st
November 2015. This has always been a hugely popular and
sucessful night thanks for our wonderful quizmaster Nick Poole!
More details to follow soon.
Harry's Sponsored Swim - May 2015
twin brother Harry recently took park in a sponsored swim to raise
money with SMA Support UK. Although Harry isn't directly affected
by SMA, it still has a a huge impact on his life. He swam 350
metres and has raised an amazing £3,069.62 so far! Well done
Harry, we're all really proud of you! www.justgiving.com/HelpingBuddy
is continuing to do extremely well and is surprising everyone with his
determination and courage. His core strength has improved due to
all his supported KAFO standing, hydrotherapy and Riding for the
Disabled sessions. He is still able to self propel in his manual chair
on smooth surfaces, but is also enjoying the speed and freedom of his
Snapdragon chair. George loves going to nursery where he has flourished both academically and socially. Well done George!
Pamper Evening - March 2015
you to everyone who came along to George's Pamper Evening in March. It
was a lovely event which raised just over £600 for The George Lockley
Fund. Thank you to Catherine Dyke-Price for all your help
organising and bringing along your Stella & Dot Jewellery. Thank
you also to all the beauticians who came along, especially Ruby Simz
Gap Kids Modelling - Oct 2014 - Feb 2015
Well done George!
He won his catergory in the Gap Kids Class of 2014! George was just one
of four winners chosen from the UK. His photos were in Gap Kids
store windows across the UK, America and Canada. Great awareness
for SMA! George loved the whole experience and was his usual
cheeky confident self during the photoshoot. There are some
photos on his Facebook page 'aboutgeorge.co.uk'
Quiz Night Number 3 - Nov 2014
Quiz on 22nd November was another successful event hosted by the
wonderful Nick Poole. Thank you to everyone who came along and
donated so generously to George's Fund. We raised a huge £3452. We
had some fantastic raffle and auction prizes and would like to thank
the following for their generosity: Kayyor Rao, GFI Holdings, Peter
Merry, John O'Gaunt Golf Club, Simon Morgan, Claire Curtis, Ruby Simz
Beauty Temple, John Lewis, Hanbury Manor, Tesco, Waitrose, Sainsbury's,
Arsenal FC, Manchester United, Woburn Safari Park, Paradise Wildlife
Park, Willows Activity Farm, Lee Valley Park Farm, Caroline Smith,
Edward Holland Hairdressers, Eleanor Jardine, Mayhem Paintball, Andrew
Mangan, Top Golf, Epping Bookshop, Beauty Therapist Melanie, Natural
Beauty Digswell, Natalie Carter, Garry Hill & Cakey Makey.
Thank you also to Mary Fenton for knitting the Christmas novelty
items and to Cakey Makey, Lois Lockley & Amy Jones for baking the
George’s progress - May 2014
George and Harry have recently turned 3 and they both enjoy
attending pre-nursery together. George
is doing extremely well and is benefitting greatly from his weekly hydrotherapy
sessions at Keech hospice. He is able to
move freely in the water and he can now swim small distances supported only by a
float. This is great exercise for
George. He has also started taking
Salbutamol syrup which has improved his arm strength slightly.
At his latest physiotherapy appointment at Great Ormond
Street, George was cast for a pair of KAFOs.
With these on his legs, George can now stand for short periods of time
without the support of his frame. Standing
like this is great for maintaining a good posture, and also has numerous other health
benefits for George. Fortunately George
loves wearing his KAFOs and is making great progress with them.
George has recently started Riding for the Disabled. His confidence is growing every week and he
has become very fond of a horse called Albert.
Horse riding is great exercise for George’s core muscles.
There are some photos of George standing in his KAFOs and
riding on Albert the horse on his Facebook page ‘aboutgeorge.co.uk’.
Panthera Bambino - November 2013
Thank you to the local charity ‘Wheels for Martin’s Friends’
who generously purchased George this fantastic lightweight manual wheelchair. George loves his new Panthera Bambino and is brilliant at manoeuvring it around at home and at pre-nursery. George had outgrown the Panthera Micro which
had previously been donated by Beatrice Howden and family. The Micro has now been passed on to another
little boy who also has SMA type 2. We
hope that it provides him the freedom and independence that it gave to George.
Quiz Night - 28th September 2013
you to everyone who came along to George's Quiz Night. Not only
was it brilliant fun, but we managed to raise a massive £3,724.50
for The George Lockley Fund. We would like to thank Nick Poole
for hosting the evening and Caroline Smith for helping to organise the
event. We would also like to thank Mary Fenton and Lesley Walton
for all their hard work and preparation.
We had some
excellent auction and raffle prizes and would like to thank the
following for their generosity: Hasbro, Tesco, Boots,
Sainsbury's, Waterstones, Tottenham Hotspur, Hanbury Manor, Molton
Brown, Lush, Legoland, Linklater Warren Ltd, Epping Bookshop, GFI
Group, Lee Valley Park Farms, Peter Merry, Kayyor Rao, Simon Morgan,
Garry Hill and Esther & Jeremy Penn. Thank you also to
Natalie Daly at Cakey Makey Heart, Anna Poole, Lois Lockley and Hayley
Goldsworthy for baking the delicious cakes.Sponsored Walk - August 2013
Thank you to Fiona Brown who kindly organised a sponsored walk for George. This event raised £852.50
for The George Lockley Fund. We would like to thank everyone who
took part and sponsored the event. Your generosity helps us
purchase specialised equipment which allows George to have similar
opportunities to Harry and others his age.
Alex and Lesley Hetherington
25th wedding anniversary to Lesley and Alex Hetherington!
Alex and Lesley (and family) played a huge role at George's
fundraising ball last year
and kindly supported George again at their anniversary
celebrations by donating the proceeds from the casino to George.
You can now raise money to help George when you shop online via easyfundraising.org.uk. To register please click here
Over 2000 leading retailers support easyfundraising including
John Lewis, Amazon, Marks and Spencer and Tesco. The retailers
will donate a small percentage of your purchase to help support George
lead as independent a life as possible. Anna Lockley & Daniel Poole
Auntie Anna and Uncle Dan got married on 20th April 2013.
Instead of wedding gifts they asked their guests to donate to the
George Lockley Fund. We would like to thank them for their
incredible generosity and kindness. Their guest's donations were
gratefully received and will help fund some of the specialised
equipment that George still needs.George's Snapdragon
now has a Snapdragon powerchair! Thank you again to everyone who
worked so hard, and donated so generously to make this possible.
George's friends Charlie Bolton
and Mackie Reed
also have SMA type 2 and their lives have been transformed since
getting their Snapdragons. We are looking forward to seeing
George enjoying his new found freedom.
ITV Text Santa Appeal - December 2012
year George was chosen to represent the charity 'Together for Short
Lives'. We were lucky enough to be sent to Disneyland Paris as a
Christmas treat. To see footage of our wonderful trip from 'This
Morning' please click here
Great Ormond Street Christmas Poster Appeal 2012
is part of the Great Ormond Street Christmas Poster Appeal. To
order your copy and help raise money for this fantastic cause please click here.
Wilson, Journalist at The Times, has written an article about George's
journey so far, which featured in 'Style' magazine on Sunday 14th
October. To read the full article please click here.
The Grim Challenge
2012, some of George’s family and friends are taking part in the
‘Grim Challenge’ to help raise money for his power chair. This is an 8
mile off road run/crawl/wade through the army vehicle testing tracks in
the wintery weather. To sponsor them please visit: www.justgiving.co.uk/George-Lockley
Quiz night - November 2012Thank you to everyone who came along to George's Quiz Night on November 3rd which raised £1,749
for the George Lockley Fund. Thank you to Caroline Smith and Nick
Poole for organising the evening and making it so successful. We would
also like to thank Buckhurst Hill Baptist Church for the use of their
would like to thank Beatrice and her family for giving George the
opportunity to have a manual wheelchair. Beatrice also has SMA
type 2 and uses a special lightweight manual wheelchair to move
independently around the house. Beatrice has outgrown her first
chair and has kindly donated it to George. We were told that
would never be strong enough to use a manual chair, but thanks to
Beatrice, George can now propel himself around our house in her
old chair. For more information about Beatrice please visit www.getbeatricemobile.org
Raffle & Auction donations
have been donated some fantastic prizes for our fundraising events. We
would like to thank the following for their support and generosity:
United Football Club, Tottenham Hotspur Football club, Hanbury Manor
Hotel & Spa, Amanda Holden, Freedom 2 Train, GFI Group, Tesco &
Pension Insurance Corporation
Thank you to all at Pension Insurance Corporation for holding a 'dress down' day which raised £200 for the George Lockley Fund.
James Bond Fundraising Ball - October 2012
The James Bond Fundraising Ball took place on the 13th October 2012 at
St Francis' College, Letchworth. The evening was a huge success raising £4,705.30 for the George Lockley Fund. Thank you to
everyone who came to the event, and special thanks to St Francis'
College and their sixth form volunteers, Kate's Band, Neha Raval, Karen
Carter, Mary Fenton, Alex Hetherington, and the many companies who
kindly donated auction and raffle prizes.
Well done to Thomas Lockley! He organised a sponsored walk in Epping Forest on 1st September and raised £2,497 for the George Lockley Fund! Thank you to everyone who sponsored this event.
Action for Kids
Thank you to the charity ‘Action for Kids’ who have kindly agreed to
buy George a ‘wizzy bug’ power chair. This will give George some
basic mobility in the house whilst we continue raising money for his
Thank you and well done to Tom Fenton, Hazel Woodland and Matthew Dye
for completing the Fred Whitton cycle challenge, running the London
marathon and running a half marathon. Between them they raised £5,774.50
for The Jennifer’s Trust on behalf of George. The Jennifer’s Trust
supports families and individuals affected by Spinal Muscular Atrophy
and helps fund and support research. Thank you to everyone who